19 MAI - JOURNÉE MONDIALE DES MICI

Maladie de Crohn et rectocolite hémorragique
Dimanche 19 mai
# PlusViteQueLesMaladies
# WorldIBDday
Célébrée tous les 19 mai, la Journée mondiale des MICI - maladies inflammatoires chroniques de l'intestin - est une journée de sensibilisation et de lobbying pour porter la voix des personnes atteintes de la maladie de Crohn ou de rectocolite hémorragique (RCH).
PRÉSENTATION
ÉVÉNEMENTS
COMMENT PARTICIPER
SOCIAL WALL
PARTENAIRES

Journée Mondiale de la maladie de Crohn et de la rectocolite hémorragique.

LES MICI UN FLEAU MONDIAL

Les maladies inflammatoires chroniques de l'intestin (MICI) regroupent deux pathologies : la maladie de Crohn et la rectocolite hémorragique.

10 millions de malades dans le monde, dont 250 000 en France.
Des maladies diagnostiquées à tout âge avec un pic chez les jeunes (15-25 ans).

Souvent considérées comme taboues, ces maladies dont on ne connait pas les causes, ne se guérissent pas.
Elles provoquent chez les personnes touchées des symptômes qui altèrent lourdement leur qualité de vie : fatigue, diarrhées nombreuses et impérieuses (jusqu'à 10 selles par jour!), douleurs abdominales, perte d'appétit et de poids, fièvre...

LE 19 MAI : UN MOUVEMENT QUI PREND DE L'AMPLEUR

Célébrée tous les 19 mai, la Journée mondiale des MICI est une journée de sensibilisation et de lobbying pour porter la voix des personnes atteintes de la maladie de Crohn ou de rectocolite hémorragique (RCH).
L’EFFCA, fédération européenne de lutte contre les MICI, coordonne une action de mobilisation européenne et mondiale avec notamment l'illumination en violet, couleur de lutte contre les MICI, de monuments emblématiques. https://worldibdday.org/

UNE FORTE MOBILISATION EN FRANCE

En France, personnes atteintes de MICI et proches, professionnels de santé, amis des MICI, bénévoles de l'afa Crohn RCH, et personnalités publiques se mobilisent aussi ! Des illuminations de monuments et des animations sont organisées dans tout le pays et relayées sur les réseaux sociaux !

En 2019, la Journée mondiale des MICI sera aussi l'occasion de relever des défis sportifs pour donner de la visibilité au combat contre ces maladies ! Clubs de sport, danse, zumba vous feront bouger pour soutenir la Recherche et défendre les droits des malades !


EN SAVOIR PLUS

LES ÉVÉNEMENTS EN FRANCE

Retrouvez sur cette page tous les événements à proximité de chez vous.

Vous organisez une action dans le cadre de la Journée mondiale des MICI ?
Contactez-nous pour l’inscrire sur la carte : jmm@afa.asso.fr


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REJOIGNEZ VOUS AUSSI LE MOUVEMENT !

Nous vous proposons une série d’actions faciles à mettre en place seul ou à plusieurs, pour donner de la visibilité à notre combat. L’afa Crohn RCH vous accompagne pour mettre en place un événement, contactez-nous : jmm@afa.asso.fr / 01.42.00.00.40.

Faire une illumination en violet

Partout dans le monde et en France, des monuments emblématiques, des bâtiments, des bureaux, des entreprises, seront illuminés en violet. Une belle façon de mobiliser votre ville ou votre entreprise !

Fiche action à télécharger
Un selfie pour soutenir la Journée Mondiale
Partager sur les réseaux sociaux

Postez des photos de vous, de vos proches, de vos collègues… sur les réseaux sociaux avec le hashtag #WorldIBDday ! Une seule consigne : porter des vêtements ou des accessoires violets !

Vous connaissez une personnalité de votre région ? Faites-la participer avec un accessoire violet !

Organiser une activité sportive ou de danse

En 2018, nous mettons l’accent sur les bienfaits du sport pour les malades des MICI !

Clubs de sport, de danse, de zumba, sont invités à organiser des séances de soutien : tous habillés en violet ! Pensez à partager sur les réseaux sociaux vos prestations avec le hashtag #WorldIBDday !

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Tenir un stand ou organiser une conférence

La Journée mondiale des MICI est une journée de sensibilisation et d’information. Vous pouvez participer à la tenue d’un stand afa Crohn RCH sur un espace public, dans un centre hospitalier ou dans une entreprise. Vous pouvez également organiser une conférence ou une projection en lien avec ces pathologies.

Faire un don
En faisant un don à l’afa Crohn RCH, vous soutenez la Recherche et nos actions de soutien et d’accompagnement des malades.
FAIRE UN DON
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DEVENEZ PARTENAIRE

Partenaires publics, Centres hospitaliers universitaires, de territoire et de proximité, entreprises et fondations, associations de santé, sportives ou culturelles, votre soutien est essentiel : toute contribution à la Journée mondiale des MICI est une pierre ajoutée à l'édifice de notre combat.
Votre contact :

LA PRESSE EN PARLE